An Answer: 33 Months in the Making

Oh friends! It’s been a while. Not that I haven’t begun several posts and then found myself completely uninspired and just walked away… I felt like I was on fire there for a while, but then I hit this slump where everything just felt forced and I knew that it wasn’t what I wanted to put out there for the world to read.

Today is different. Over a year after my last post, I finally feel that tingling of inspiration. Much has happened over this last year and we are currently on the most intense spiritual high that I, personally, have ever experienced. I have chronicled the medical journeys of my two beautiful little boys to some extent, but as the demands chronic medical conditions became more normal than novelty, I stopped sharing. We were just doing life and that was it. It has been a frightening and exhausting time, but we finally know what is wrong with our oldest boy (DS4)! Are you ready to hear the news?

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Freestyle Fridays: “My Power. My Choice. My Forgiveness.” by Mathair Fiona

I have a guest post over at Winding Road! This is possibly a triggering subject so please be aware of that and reach out if you need someone to talk to. I am so glad to have had the opportunity to share this part of me and hope that it is a blessing to you.

Winding Road

Mathair Fiona is a blogger whose posts I never miss. I can’t exactly put her in a nutshell which is what I think I like best about her. Meghan is inspiring, thought-provoking, honest, curious, and very smart. I am particularly honored to be hosting this post as she shares very defining moments in her life.

When Kerry asked me to guest post, I wasn’t even remotely sure what I would write about. Luckily, she has a topic list for her Freestyle Fridays so that gave me a place to start.  I’ve landed on a defining moment in my life.

Typically, the posts on my blog are inspired by whatever is going on in my life at the moment, things I’m reading/studying, or current events. The topic I am going to share today has been one that I have been wanting to write about for quite some time, but I have…

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Spreading the Word About Mesothelioma

Borrowed from somalithinktank.org

I was approached by a man named Cameron Von St. James about sharing a video about his wife, Heather.  Her story really touched me and I, of course, agreed to share.  Heather was diagnosed with mesothelioma only three months after giving birth to her daughter, but is now a cancer survivor!  When she learned of her diagnosis she knew that most only live 15 months once receiving the diagnosis.  I can’t even imagine how heartbreaking that would be.  My family also has cancer survivor stories and I am more than happy to share with all of you to spread awareness.

Enjoy!

Heather’s Story

 

You Are a Gift

Borrowed from andshelaughs.wordpress.com

For those of you who have been keeping up with the craziness of my life, you know that shit has been TOUGH.  Incredibly tough, but there has been so many people to help our little family survive.  I’ve spent a lot of time trying to keep our family together and functioning and have, naturally, neglected certain aspects of my life.  Namely, my own self-care and my relationship with my husband.  We all know that both of those aspects our lives are vitally important, but, just as true, we let them play second fiddle to our children and their needs far too often.  As life has been settling down, I have been better able to recognize areas of my life that are suffering and try to address them.  This is easier said than done.  However, I was inspired to write about this after hearing Blake Shelton’s song, “God Gave Me You.” Continue reading

A Mother’s Reflection on Two Months of Absurdity

I’m back!  I’ve been MIA now for approximately two months, but I now have a quiet moment to sit down and do a little bit ‘o writing.  I have been thinking a lot lately about the way I would go about writing this post because A LOT has gone on in this family.  I thought about doing an “update,” but that actually made me feel a great bit of anxiety because I don’t really want to re-hash all the details for the millionth time.  So then I was stumped, but after talking with my father-in-law at Sunday dinner last night, I decided I wanted to do more of a “reflection” on the past two months. Continue reading

Seizures? Are You Freaking Kidding Me?!?

Borrowed from nwkpsych.rutguers.edu

O.K. folks, time to slow down with a serious post.  Since February, we have been dealing with my little boy potentially having a seizure disorder.  He had what appeared to be a seizure in February, but since there were no other symptoms associated with the episode, it was kind of written off as just potentially being an anomaly.  Then, he had another seizure-like episode in June.  After this, we went for an EEG which came back completely normal.  This is when we entered the “wait and see” period of his medical life.  Then yesterday, he had another episode and the doctor said what I described sounded much more like a true seizure than before.  Things are now moving pretty swiftly with this rather unnerving medical problem. Continue reading