An Answer: 33 Months in the Making

Oh friends! It’s been a while. Not that I haven’t begun several posts and then found myself completely uninspired and just walked away… I felt like I was on fire there for a while, but then I hit this slump where everything just felt forced and I knew that it wasn’t what I wanted to put out there for the world to read.

Today is different. Over a year after my last post, I finally feel that tingling of inspiration. Much has happened over this last year and we are currently on the most intense spiritual high that I, personally, have ever experienced. I have chronicled the medical journeys of my two beautiful little boys to some extent, but as the demands chronic medical conditions became more normal than novelty, I stopped sharing. We were just doing life and that was it. It has been a frightening and exhausting time, but we finally know what is wrong with our oldest boy (DS4)! Are you ready to hear the news?

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2013: The Year of Love and Strength

2013.

What a year.

It started out simple enough.  I was pregnant with our second child and life was pretty average.  Little did I know, I was about to take the ride of my life. Continue reading

A Mother’s Reflection on Two Months of Absurdity

I’m back!  I’ve been MIA now for approximately two months, but I now have a quiet moment to sit down and do a little bit ‘o writing.  I have been thinking a lot lately about the way I would go about writing this post because A LOT has gone on in this family.  I thought about doing an “update,” but that actually made me feel a great bit of anxiety because I don’t really want to re-hash all the details for the millionth time.  So then I was stumped, but after talking with my father-in-law at Sunday dinner last night, I decided I wanted to do more of a “reflection” on the past two months. Continue reading

How Do I Survive This?

Borrowed from huffingtonpost.com

I am OVERWHELMED.  There is quite literally no other way to describe what I am feeling on a day-to-day basis.  It was one thing when I was trying to settle in to a new routine with our newborn and our two year-old, but now our family is coping with medical conditions in both boys.  Life is not simple for our family right now, but I am doing my best to keep it as simple and non-traumatic as possible. Continue reading

Seizures? Are You Freaking Kidding Me?!?

Borrowed from nwkpsych.rutguers.edu

O.K. folks, time to slow down with a serious post.  Since February, we have been dealing with my little boy potentially having a seizure disorder.  He had what appeared to be a seizure in February, but since there were no other symptoms associated with the episode, it was kind of written off as just potentially being an anomaly.  Then, he had another seizure-like episode in June.  After this, we went for an EEG which came back completely normal.  This is when we entered the “wait and see” period of his medical life.  Then yesterday, he had another episode and the doctor said what I described sounded much more like a true seizure than before.  Things are now moving pretty swiftly with this rather unnerving medical problem. Continue reading